tag:blogger.com,1999:blog-2590060622489981913.post4288248182161390448..comments2012-09-12T05:05:42.821-07:00Comments on My Brain is a Mess: Do`s and Dont`sEmilyhttp://www.blogger.com/profile/11086042153589121356noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-2590060622489981913.post-61182559074767274022012-01-27T22:22:39.124-08:002012-01-27T22:22:39.124-08:00I'm sure it is hard for her to express how she...I'm sure it is hard for her to express how she is feeling since she's only 4. It is hard for me setimes and I'm almost 18. I hope my blog and journey will give you some hope, answers, and support. I am also writing a book that I hope to someday have finished. Best of luck with everything!<br />Thanks for reading my blog!<br />EmilyEmilyhttps://www.blogger.com/profile/11086042153589121356noreply@blogger.comtag:blogger.com,1999:blog-2590060622489981913.post-11780140244791429322012-01-26T08:58:02.217-08:002012-01-26T08:58:02.217-08:00I love this! My daughter Ali 4 years has Chiari. ...I love this! My daughter Ali 4 years has Chiari. I find her feeling some of these that you have listed and us sometimes having to cancel with friends last minute b/c she's not feeling well. I find myself struggling to explain this disease to people when they ask, and wonder sometimes if they really want to understand. You are a bright girl Emily and you have inspired me. And if you have inspired just one person then you have accomplished something in my eyes(which doesn't mean much)lol I'm not famous neither is my daughter. We are just regular people living with this disease and trying to create awareness and that is by far way more important then anything. <br /><br />Jena & AliAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-2590060622489981913.post-48078330413423271542012-01-26T06:49:17.297-08:002012-01-26T06:49:17.297-08:00I loved this when I read it on Facebook and I love...I loved this when I read it on Facebook and I love it now. You have a gift for expressing your feelings well.Donna Corranoreply@blogger.comtag:blogger.com,1999:blog-2590060622489981913.post-82880601792617504942012-01-26T06:22:39.558-08:002012-01-26T06:22:39.558-08:00I love that you can define your needs and wants an...I love that you can define your needs and wants and not fear putting them out there. Good for you! Do know that the people who love you will try to remember these things but they too will sometimes do or say the wrong thing out of helplessness. It's a dance everyone must learn.Walking Barefoothttps://www.blogger.com/profile/14136774657230741773noreply@blogger.com