I am 21 years old and a college student just trying to survive my everyday life with Chiari Malformation, Ehlers Danlos Syndrome, Intracranial Hypertension, Mast Cell Activation Disorder, POTS, Tethered Cord, Gastroparesis, and Interstitial Cystitis.
Tuesday, April 5, 2011
2nd Surgery Date
Duraplasty surgery is scheduled for May 6th at 8:00am. I will be at Levine Childrens Hospital in Charlotte for about a week and I will be in ICU for the 1st 24 hours. I would LOVE to have visitors. It makes the hospital stay so much better to have company! Thanks for all the prayers and thoughts! :-)