Thursday, May 31, 2012

Let the Countdown Begin

This post is going to be short and sweet as not much has changed on my health front.
It is June 1st which means I have 9 days until graduation and 12 days until surgery. I am not nervous about the surgery. I have done it just a few times. ;)
I had physical therapy yesterday. My rotation of my neck is improving, which is really good. I will go one more time next week before surgery.
I had the opportunity to babysit this week three sweet kids. It was so much fun and good for me. I felt great the whole day. I definitely want to do it more often.

Also, I have some Team Emily shirts on hand that you can buy.
T-shirts are $15.00 and sweatshirts are $27.00.
Leave me a comment and a way I can reach you if you are interested. Thanks!
-2 Adult small
-1 youth small
-3 youth large
-1 adult large

Saturday, May 26, 2012

Number 6

I will be having surgery #6 on June 12th. That is three days after graduation. Just the way I wanted it. Dr. Henderson will be putting a shunt in. They said I should only be in the hospital two days. That is all I really know. No one ever wants surgery, but I am so tired of having a headache almost every single day of my life, so I cant wait.  

On Thursday I went with the Preschool on their last day of school field trip to Dan Nicholas Park. It was lots of fun and good to see those sweet kids. That night was the dance recital. Baylie and Lily both did a wonderful job. I felt GREAT that whole day.

Friday I had physical therapy to work on my range of motion in my neck. I still have a LONG way to go. I am no where near where I need to be. That day I had a horrendous headache. I felt worse than I had in a long time. I always have the headache, but that put me in bed and no pain medicine was working. I am allergic to Oxycontin, but I was desperate so I decided to try it. I took it and two benadryl and within an hour I felt great. I cant remember the last time I have taken that strong of a medicine. I have found though that the early I wake up and take my medicine and am doing something the better I seem to feel. I have added another dose of Diamox. I am now taking four 250mg doses.

Today I felt fine and stained the deck as well as went to Mooresville and got some graduation party stuff.

I am looking so forward to Tuesday when I will be babysitting a sweet girl from preschool and her awesome brother that is in Kindergarten. I love them both to death and I think it will do me some good. I love to babysit and have not been asked to in forever because of everything going on. I feel comfortable doing it though and it is one of the things I truly miss. I am beyond excited! It gives me some normalcy that I have been missing. :)

I hope everyone has a PAIN FREE Memorial Day Weekend!

Sunday, May 20, 2012

A Normal Night

The whole prom experience was absolutely amazing!! I felt great the whole night. It was the first time in a long time that I had gotten dressed up and felt put together. Being sick, I kind of downgraded from looking nice to pajamas or t-shirts and jeans, but last night reminded me of how good it felt to be dressed up.
I went with two friends. We got our hair done, had pictures taken and we were off. There was no way I could of even danced if I wanted to because of the strobe lights, but it was still awesome to be able to be there and take in the experience.
Our theme was Hollywood. They gave two stars out. One was to our assistant principal whose son just passed away from cancer. When they started talking about the next one they were giving out I new immediately I was going to have to go on stage. I knew when he said "Seniors, you have a classmate who has been sick" that it was me. I am the only one in my class who has been. It took all I had to walk up there and hold it together. So I received a star with the senior class signatures on it. I really do have a great and supportive class.
We went bowling in our dresses and apparently everyone else had the same idea too. That was another thing I have not been able to do because I have not been able to lift.
We got home about 1:00. It was a great night all around. I really am so glad I went.

Doctor Henderson`s office should be calling tomorrow to schedule shunt surgery for the summer. I have also developed what I thought was a spinal fluid leak around my tethered cord incision on my lumbar area. It it swollen and sticks out and is a little purple. Dr. Henderson said it was probably not a leak. He thinks it is lymphatic fluid. So no worries there.

Tuesday, May 15, 2012

Quick Update

Not much to update on health wise. I'm feeling the same. I am continuously nauseous all day every day. And now my right arm is very weak and is hard to use.
This week is BuSy! I have prom, my sister Baylie`s Confirmation, and senior awards added with some small daily stuff. I'm hoping I can make it through all that. It does not seem like much for the average person, but believe me when I say it will wipe me out completely. Its hard to believe that there are only 17 days of high school left for me ever. Its very bittersweet, but I'm ready. It is a really good feeling to accomplish school with everything else I have dealt with.