Thursday, June 21, 2012

Surgery was a Success....

Over a week ago on Tuesday, June 12th, I had a lumbar shunt put in. I was in the hospital two days and did very well. The only problem was a spinal fluid leak and low pressure headache. I kind of expected it. I layed flat for FIVE very long days and had more soda (for the caffeine) than I ever want to have again.

I am feeling great and have NO headache or brain fog. I do have three incisions. One on my stomach (its the biggest and most painful), one on my side and another on my back. The only complaint I have is that the tubing draining the fluid into my abdominal area is very painful. It comes and goes, but when it`s hurting it`s breathtaking and hard to move. Hopefully that will get better as time goes on.

It is the most amazing feeling to feel great. I am taking NO pain medicine for the first time in almost 4 years and want to get out of bed and do something. :) Don't every take feeling good for granted, you never know what God has planned...

I am ready to move on with my summer and start having fun.
Thank you for all the prayers and thoughts. They mean so much!


Football games, prom, driving and clubs, that all had to be missed as I was very busy trying to get well. I do feel like I missed out on a whole lot of things the past four years and it would of been different if I had not had to fight to get well. Although, I did not have the 'high school experience' I had the life experience that not everyone my age has had. That is the past now and I can`t go back. So looking to the future, I am excited to see what God has in store for me!

Graduation day was every thing I expected. A very bittersweet, but great day! I had nine family members from Florida and Georgia here and big party later in the afternoon after graduation. 

The past 13 years have FLOWN by and it is hard to believe that elementary, middle, and high school is over. I am looking forward to whats ahead.......

Sunday, June 3, 2012

Kidneys, a project, and a new blog suggestion!

I have been in so much pain today. NOT because of a headache or my EDS, but because kidney stones/pain. I already have two, but I either have another one or the other two grew. I am heading to the urology sick clinic in the morning. No time to be sick, since this is the beginning of graduation week and only 9 days until surgery.

My sister, Baylie did her final project for her English class about me and my health journey. She did such an AWESOME job. I was in tears. I uploaded the video to YouTube and will post the link below so everyone can view it. She has been so tough through all of this and has always been there for me, her and Lily both.

It is much easier to live this life everyday than to hear it or read it out loud. When you are living it you do what you have to do without thinking about it too much, but when you are reading or saying it it sounds so much worse. I guess that's why I don't really like attention or to have to tell someone about it everywhere I go. I just realize how bad off I really was or still am when I say it.

Also, my best friend Jade just made a blog called 'Creative Junkie'. She would love to have some new followers, so if you have a minute stop by and read it and leave her a comment. Thanks! :)
If you have a blog let me know the name of it in the comment section, so I can check it out.

This is the link to the project Baylie did on me.